Thursday, February 23, 2012

So far this is what I have done. After tearfully leaving the doctors office, I managed to catch my breath long enough to call Evangeline's case worker, Monica. I left her a message with the terrible news. When she called me back she set up an appointment to come see us Monday. CHOP recommended I have Evangeline's hearing rechecked. The next morning I called to make the appointment and the had an opening that afternoon. So after my meeting at Colin's school on strategies to help him make friends, we were off to CHOP, the hearing test went well (kind of hoping it didn't and that's what the problem was). That evening I had the Mother/Son event with Connor. Then off to the beach for the Polar Bear plunge. My plan was to keep the new info about our lives a secret so we could enjoy the weekend with our friends. I did spill the beans and I am glad I did, it is good to have a great support system. An older gentleman walked up to Evangeline on Saturday and put an autism pin on her, I looked at Ed, thinking could that man tell? We came home from the shore and I worked from 12 to 9:00, just wanted to be home with my baby.

Monday arrived, Monica came. As of right now Evangeline will see her SI therapist (who she loves and sees 1 time a week since November) she will start seeing her 2 x's a week. 1 day of OT and waiting to hear about 2 days with a speech and language pathologist. I made an appointment for both Colin & Evangeline to see CHOP's genetic doctor in AUGUST. I signed up as a Team Captain for the Autism Speaks Philadelphia Event. I finished Jenny McCarthy's book Louder Than Words. I have read about 100 blogs about Gluten Free diets. I have read at least 100 websites about Autism.

Today is a good day. I am optimistic. I will try to stop thinking about her future, those are the thoughts that bring on the most tears. I will take this day by day and give everything I have to getting my Angel to talk to me.

I love you Ma Belle Evangeline.

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