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So, what a life I am having. Ed's Creatinine level is getting worse. He seems to be in total denial. I am a mess. I think we should go to the ER at Penn and get this process started quicker. I have actually read about his condition, it is called IgA nephropathy. He has no idea what it is or how serious. He is also in late stages of this illness, but I am no longer allowed to ask how he is feeling or talk to him about it. So the fact that I ( and my sister in law Melissa ) are the only ones that think his treatment should be moving along faster., and his kidney function is decreasing at a rapid rate. I am not allowed to bring this up any more. I look terrible because every part of my body hurts. The level of stress I am under with this and therapy for Evangeline and Colin coming home having a nervous breakdown over wanting to quit Chorus, and Ed walks around telling everyone he is fine!! He is walking around with 10% kidney function and everyone who wants to lend a hand and be helpful, either making dinner or helping with the kids isn't going to feel like doing it, if he is just peachy. He doesn't understand that these things help me. He says he feels fine, but he can barely keep his eyes open. I am having a very frustrating day. I had to cancel Evangeline's OT this morning because my migraine was so bad I couldn't even see. I have to figure out how to get Colin home from school today since it will be during Evangeline's nap and she has therapy after lunch and needs to be rested. Then off to the nephrologist, for what? I don't know. Then I am taking Evangeline to an ABA evaluation, not sure if I will make it to Stations of the Cross or Confession tonight. When I end up in the mental institution, I will have this blog to explain why.